Last week I spoke to a group of payers — health insurance executives, Medicare and Medicaid representatives — and shared with them the many ways in which we patients feel the American healthcare system is failing us. The points I made came from you — my readers — from the many stories you have shared […]
Guerrilla Patienting: Getting the Healthcare You Need Read More »
(The post below was put online this morning at 8:15 EDT. An update at 10 AM — Randy Pausch died this morning. My prayers are with his family.) ………………………………………………….. Because so many of you, my readers, have checked here to learn more about Randy Pausch, I bring to your attention a comment made by Claudia,
July 2008 – Update on Randy Pausch Read More »
As more and more questions are being asked about how we Americans can possibly continue to pay for our healthcare, a documentary has surfaced that will help us citizens better understand why the American Healthcare System is on the ropes, and ready to implode. A new website called Snagfilms is now offering documentaries, independent films,
Peter Jennings, Healthcare Reform, Asking the Tough Questions Read More »
Sometimes the best way to accomplish the most is to get good heads together for conversation, brainstorming and more. Some of those names we hear over and over again in the patient safety world were able to join forces at a picnic in Aiken, South Carolina, on July 4th. Organized by Dianne Parker, the group
Patient Safety Day, “Independence” Takes on a New Meaning Read More »
[To catch up on previous chapters of Heather’s story, link here (post #1) and here (post#2.)] Heather had her first oncology appointment today. She was lucky to get in so quickly after her primary care physician ditched her (that still makes me shudder) and she was prepared. Last week, after my post about her diagnosis
Heather, SPTCL, the Next Chapter – Hang on to Your Hat! Read More »
There aren’t many times that I am left speechless, but this is one of them. If you are a regular reader of CNN’s Empowered Patient, offered each week by Elizabeth Cohen, then you know there have been any number of outstanding advocates featured. People who work tirelessly to improve our safety, access and navigation through
CNN’s Heroes of Patient Empowerment. A Humble Thank You. Read More »
Here’s the good news: Heather does not have SPTCL. Here’s the bad news: Heather does have another type of T-cell lymphoma called CGD-TCL, cutaneous gamma-delta t-cell lymphoma. Also written with Greek letters: cutaneous ?/? T-cell lymphoma To say that both Heather and I were shocked is an understatement. If you read my post a few
Heather, SPTCL, Another Misdiagnosis and Doctors Who Should Not Practice Medicine Read More »
I spent a few hours yesterday with a delightful team of people who YOU should get to know, too. Meg, Pauline and Blake are traversing the country this summer in a big blue bus (they call it the blue beast!) in the Cover America Tour. Sponsored by Consumers Union (the Consumer Reports folks) it is
The Blue Beast, and Your Chance to Make a Difference Read More »
