Patient Advocacy

Have You Been Diagnosed with Cancer? Are You Sure the Diagnosis is Correct?

When I received my cancer diagnosis in 2004, and proved I didn’t really have cancer at all, it was the first time I had ever heard or known about that form of misdiagnosis. It’s backwards from those we hear about more frequently.  Most of the time we hear about a “missed diagnosis” — meaning someone […]

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Wrong Site Surgery — What Happens Next?

I don’t usually write about local or state news because my work is really more broad than that — however — an article in my local newspaper about a local hospital and wrong-site surgery just begged for some additional information! Wrong site surgery — a “never event” that takes place an estimated 100 – 200

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Daniel Was Misdiagnosed with SPTCL, Too

It’s been awhile since I’ve posted.  In that time I’ve been the Gramma-sitter for my two little grandsons while their new baby sister arrived (welcome Kyla Shay!), buried my ex-husband’s cremains (he died last April), spoken to two groups of patients, recorded two radio shows and finished my book proposal. Enough excuses, you say! But

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Daniel’s SPTCL Diagnosis is Suspect, Too

When I was (mis)diagnosed with SPTCL (subcutaneous panniculitis-like T-cell lyphoma) in 2004, I was handed a book, published in July 2004, that stated that “fewer than 100 cases have been reported in the last decade.” Yeah — really, really rare. Because that’s a book used by oncologists all over the world. Then, from Fall 2004

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Never Events — Shooting the Messenger

Beginning October 1, 2008, Medicare, and many health insurance companies, will no longer pay hospitals for the additional services needed for patients who suffer from “never events.” Never Events, as defined by the National Quality Forum, are those events which should never happen to a patient.  There are 28 errors on the list ranging from

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Ulterior Motives for Eating Disorders, Too

I had lunch today with a long-time friend, Mindy.  (No, of course that’s not her real name…) It’s been at least a year since we saw each other, and probably two since we had a long conversation. My heart broke as I learned that her daughter, Lindsay (not her real name either) has, for lack

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MRSA: Patients Ignored, Left to Die – Redux

Last January I posted three stories I had been told, all within a few days of each other, about patients who had acquired MRSA in the hospital and had been revictimized by the system that would not treat them, listen to them, or help them get well. Over the next several days, I was condemned,

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A Sea of Broken Hearts – Dad Posts About the Loss of Alex

I’ve added another guest post this morning — one that will break your heart, too. John T. James, PhD, a dad — and now a fixer — posted about his son Alex, a seemingly healthy 19-year-old college runner who one day collapsed, was hospitalized, and died a few weeks later. The problem is, of course,

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Trisha Torrey
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