I’ll begin this post by saying that I understand the basics — that many parents of children with autism believe that autism was brought on by vaccines. And that scientific research has over and over again proven that link does not exist. Then I watched the Dateline / Matt Lauer interviews and exposé, A Dose […]
Autism and MMR Link, Parents Fooled, Follow the Money, Then LISTEN Read More »
A friend and colleague, Franny, shared her story with me and caused my jaw to drop. Then, I realized it didn’t really surprise me at all. Having suffered months and months of treatment for his brain cancer, Asa’s life was almost lost due to the arrogance of the resident who was in charge of his
A Doctor’s God Complex, a Life Nearly Lost Read More »
If you’ve read this blog for awhile, then you know 2008 was the year of SPTCL misdiagnoses. SPTCL, subcutaneous panniculitis-like T-cell lymphoma, was the rare and deadly lymphoma that kick-started my work as Every Patient’s Advocate. I was told I had it. In fact, I was told by two labs and an oncologist that I
An End Of the Year Revisit — SPTCL and Misdiagnosis Read More »
Over the past several months I’ve had the pleasure of getting to know Dr. Gregory Eastwood. He may claim he is retired, but that would hardly be true. He is the former president of SUNY Upstate Medical University and former interim president of Case Western Reserve University. Today he teaches bioethics and humanities to medical
When Is An Oath Not a Hippocratic Oath? Read More »
De-cancered — a good word, isn’t it? Look at these two faces — they look quite healthy, don’t you think? Well — they most certainly are — quite healthy, despite the chemo both faced prior to proving neither one had the cancer she was diagnosed with. What this photo doesn’t show, is the emotion behind
Two Healthy De-Cancered Patients Read More »
When I received my cancer diagnosis in 2004, and proved I didn’t really have cancer at all, it was the first time I had ever heard or known about that form of misdiagnosis. It’s backwards from those we hear about more frequently. Most of the time we hear about a “missed diagnosis” — meaning someone
Have You Been Diagnosed with Cancer? Are You Sure the Diagnosis is Correct? Read More »
I don’t usually write about local or state news because my work is really more broad than that — however — an article in my local newspaper about a local hospital and wrong-site surgery just begged for some additional information! Wrong site surgery — a “never event” that takes place an estimated 100 – 200
Wrong Site Surgery — What Happens Next? Read More »
It’s been awhile since I’ve posted. In that time I’ve been the Gramma-sitter for my two little grandsons while their new baby sister arrived (welcome Kyla Shay!), buried my ex-husband’s cremains (he died last April), spoken to two groups of patients, recorded two radio shows and finished my book proposal. Enough excuses, you say! But
Daniel Was Misdiagnosed with SPTCL, Too Read More »
