Robin Roberts, Good Morning America’s host, now in treatment for breast cancer, practices what I preach. Wise woman. No — I take no credit for her progress. In fact, I very much doubt she has ever heard of me or my work. But in so many ways we are of a single mind, and I […]
Robin Roberts and Self-Advocacy Read More »
This is one of those post ideas that just lands in my lap and begs to be written. I attended a presentation this week, and the woman sitting next to me began her tale of healthcare frustration — just as almost anyone who has sat next to me at a presentation, and learns what I
Discounting Patients Creates a Lose-Lose Read More »
Hmmm…. you’re wondering…. what on earth is SPTCL? It’s the cancer that was supposed to kill me. It stands for Subcutaneous Panniculitis-like T-Cell Lymphoma. And when I was diagnosed with it in the summer of 2004, everything I read told me it was very rare, highly aggressive, and even with chemo, my life would not
An Exciting Update on SPTCL Read More »
I heard a conversation on the radio this morning, with commentary to share with you. Joe Galuski, the morning host on WSYR Radio (Clear Channel) in Syracuse, NY engaged the weather guru, Pat Pagano, in a conversation about long term climate changes, global warming and those issues that surround them. Pat kind of poo pooed
Of Chicken Little and Life Insurance Read More »
As I tooled down the highway on my way home last evening, I heard a commercial on my radio that needs to be shared with you. I was particularly interested because as important as the message was, I really had to wonder just who was paying for the commercial time! Because the message was not
Ultimate Patientude: Your Final Wishes Read More »
I’ve only lived in this health and medical environment for not-quite-three years, and I am always in search of opportunities to learn more. I attend workshops, interview doctors and other providers, network with others who do advocacy work, talk to other patients, read, read, read, and mostly just listen. As each day passes by, I
The Concept of “Patientude” Read More »
I’ve only lived in this health and medical environment for not-quite-three years, and I am always in search of opportunities to learn more. I attend workshops, interview doctors and other providers, network with others who do advocacy work, talk to other patients, read, read, read, and mostly just listen. As each day passes by, I
The Concept of “Patientude” Read More »
I’ve got a really lousy cold. You know, the kind that fills your head like a water balloon, makes your throat feel like someone has raked long finger nails down your esophagus and each time you cough, your entire body hurts. Yeah, the “common” cold. It started Saturday with the general malaise, intermittent cough, slight
Chasing Symptoms vs Finding a Cure Read More »
