Hmmm…. you’re wondering…. what on earth is SPTCL? It’s the cancer that was supposed to kill me. It stands for Subcutaneous Panniculitis-like T-Cell Lymphoma. And when I was diagnosed with it in the summer of 2004, everything I read told me it was very rare, highly aggressive, and even with chemo, my life would not […]
An Exciting Update on SPTCL Read More »
I heard a conversation on the radio this morning, with commentary to share with you. Joe Galuski, the morning host on WSYR Radio (Clear Channel) in Syracuse, NY engaged the weather guru, Pat Pagano, in a conversation about long term climate changes, global warming and those issues that surround them. Pat kind of poo pooed
Of Chicken Little and Life Insurance Read More »
As I tooled down the highway on my way home last evening, I heard a commercial on my radio that needs to be shared with you. I was particularly interested because as important as the message was, I really had to wonder just who was paying for the commercial time! Because the message was not
Ultimate Patientude: Your Final Wishes Read More »
I’ve only lived in this health and medical environment for not-quite-three years, and I am always in search of opportunities to learn more. I attend workshops, interview doctors and other providers, network with others who do advocacy work, talk to other patients, read, read, read, and mostly just listen. As each day passes by, I
The Concept of “Patientude” Read More »
I’ve only lived in this health and medical environment for not-quite-three years, and I am always in search of opportunities to learn more. I attend workshops, interview doctors and other providers, network with others who do advocacy work, talk to other patients, read, read, read, and mostly just listen. As each day passes by, I
The Concept of “Patientude” Read More »
I’ve got a really lousy cold. You know, the kind that fills your head like a water balloon, makes your throat feel like someone has raked long finger nails down your esophagus and each time you cough, your entire body hurts. Yeah, the “common” cold. It started Saturday with the general malaise, intermittent cough, slight
Chasing Symptoms vs Finding a Cure Read More »
Some very positive steps are being taken in one Pittsburgh hospital, notable because they were taken on the intiative of the hospital and not because a gun was being held to the head of the decision-makers. This article from the NY Times makes me stand up to cheer. It tells about the efforts of the
MRSA Almost Destroyed in Pittsburgh Read More »
It’s not often I aim my blog posts toward doctors and providers, but this follow up post to Hell of the Angry Patient is just that; a follow up with ideas for doctors who find themselves and their staffs confronted with an angry patient. Forgive the regurgitation of some of the earlier post, but I
Doctors: How to Treat an Angry Patient Read More »
